MS Awareness Month Spotlight: Samantha Salvaggio

Here we are in our second week of Multiple Sclerosis (MS) Awareness Month. As I stated in my last post, Novellia with The Skoop, I will be highlighting websites, podcasts, newsletters and other resources for people living with MS. Today I am ecstatic to feature one of my favorite MS Warriors, Samantha Salvaggio (Vanderman). Samantha and I have stayed in touch since she was a guest blogger last March. She is doing wonderful things for the MS community and I knew I had to share it with my readers. I invited Samantha on a Zoom call so we could discuss what’s new with her and what she has planned for the future. Watch our Zoom call at this link,

https://www.youtube.com/supported_browsers?next_url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DoJat1g-BAR0&feature=youtu.be

I seriously don’t like how YouTube always stops the video at the worst moment. I look crazy 😆.  Oh and I don’t know how to edit, so… Anyways, Samantha has been very active in spreading her message with the world. You will be able to find links to other publications and podcasts Samantha has collaborated with on her website, samanthasalvaggio.com. In the About tab on her webpage, just click on Collabs. You can also sign up for her weekly newsletter on the website. Follow Samantha on all her social media pages to keep up with this incredible human being and her future endeavors.

IG: @slsalvaggio

Facebook: Samantha Vanderman Salvaggio

TikTok: slsalvaggio

I am so thankful and grateful for Samantha. She comes through everytime I reach out to her. Samantha is also a true Warrior that shines her light bright for all to see. If you haven’t read her previous posts from last year’s MS Awareness Month, please go back and read them. Hopefully, Samantha and I will have more collabs in the future 😉. If this blog post, or any other previous posts, has resonates with you, please share it with someone else. Someone who you feel may benefit or enjoy this content. It would be greatly appreciated. Let’s help spread Samantha’s message to “Become Aware. Accept It. Adapt. Thrive.” Stay well and whole. Much Love 🧡 💚

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Novellia With The Skoop

Today is March 1st, which kicks off Multiple Sclerosis Awareness Month and Women’s History Month. Well, I am a woman with multiple sclerosis so I feel as if I own this month 😆. This Multiple Sclerosis (MS) Awareness month I will highlight different resources for individuals living with MS. There are podcasts, magazines, newsletters, blogs, you name it. And I have come across a few resources I have found interesting, uplifting and educational. Interesting information that I have not heard before. Uplifting content that helps me to look at the bright side of multiple sclerosis. And educational studies and research that keeps me up to date with medical developments. For me personally, those are my requirements for MS information. Novellia, which I will be highlighting in this post, is a resource that continually provides content that meets my requirements.

I was going to do this very generic post about Novellia. It would have been me listing them as a resource and my perception of the newsletter I received. Then I said, “Hey, why not reach out and see if they would be willing to share more information with you?” Well, that thought paid off! The Novellia team not only responded to my message, but called me and we had a very informative chat 😁💃🏾🤸🏾‍♀️. Now I feel like I have been slacking on going after what I want. Not saying it will be that easy every time, but what could it hurt to reach out for the things you want? No one likes to hear No, yet it may just be a Yes. And right now, I will take 10 NOs for one YES because that Yes feels so damn good.

Novellia, pronounced No veil le a (yes, I pronounced it wrong before speaking with the team), currently provides a weekly email newsletter called The Skoop. The name Novellia, specially created by the team, is a double entendre. It uses the word “novel” as in new, revolutionary and “novel” as in a story, my story, a new complete chapter. Novellia is a new way to present information regarding multiple sclerosis and it offers the opportunity to tell the stories of individuals living with multiple sclerosis. I was introduced to Novellia by Samantha Vanderman. Do y’all remember her? She was the beautiful young lady who shared her MS stories with us last March. If you are new here, please backtrack and read her posts.

Novellia shares the most up to date MS research and studies. The Skoop also features stories written by individuals living with MS. The format of the newsletter is easy on the eyes and the flow of information is clear and concise, which makes it better for my MS brain. Team Novellia’s content is delivered in a way that is understandable, but also engaging and entertaining. As they say, “MS complicates, Novellia simplifies.” Instead of overloading you with the boring medical jargon, they give you the TLDR (Too Long, Didn’t Read) version, but also provides the readers with links to the studies they are citing. Team Novellia allows MS warriors to share their stories via interviews or to write an article to be included in The Skoop. They also feature a Moment of Zen, which is usually a beautiful picture of nature taken by Georgina Wakani. In the last newsletter, the picture was a snowy field with the sun shining brightly. The Skoop is delivered to your email Monday morning to kick off the week.

Team Novellia is a group of people including, nurses, journalists and individuals with chronic conditions, whose goal is to shine the spotlight on MS warriors. After looking at the other resources provided for individuals living with MS, Team Novellia realized that it has to be a better way. The Skoop was created to break the barrier between the scientific community and the people who would benefit from science the most. Novellia, with their “novel” approach to MS awareness and information, have grown so much since inception and are now formulating other ways besides The Skoop to engage the MS community. Novellia currently has a wellness challenge going on with plans to start hosting virtual and in person community events with a fun, safe and party like environment. I am happy that Novellia came on the scene to shake things up and to buck the norm. I am also excited about the future of Novellia and all the team has planned for the MS community going forward.

I am humbled and grateful to Team Novellia for taking the time out to speak with me and give me insight into their mission and their purpose. I have been onboard with Novellia since their first newsletter. Each week, I look forward to the information Novellia shares, reading other warriors insights and stories and giggling at their puns, which I get because I am a total geek. I will continue to share updates, future events and tidbits about Novellia. If you know of anyone with MS that you think can benefit from the Skoop by Novellia, please share this information. They can sign up to receive The Skoop via email on Novellia’s website, www.novellia.com. You can also find Novellia on Instagram, @novellia.ms. As always, be well and whole. Much Love 🧡 💚

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“What It’s Like When You Find Out Your Friend Has Multiple Sclerosis?”

This is the last day of MS Awareness month and as promised, I have the recording of the Zoom with my friends. I am so happy that we finally brought this to the table and discussed it. I felt so much love and support. It was truly touching. As I said before, cuss words are present in this video. If you are sensitive to cuss words, I do not recommend this video. If not, enjoy!

I really hope that you were able to get something from this video. We had a great time. We even spent an hour talking after the recording. I can’t imagine life without these amazing ladies. They are truly my soulmates. Thank you Delanea, Sheron, Monica and Selena for being vulnerable and sharing your stories. Thank you once again to Samantha Vanderman and Shayla Russell for your contributions this month. You ladies blessed me. And thank you for being a part of my world and taking this journey with me. Continue to be well and whole. Much love 🧡💚

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